KiDD syndrome is the consequence of untreated Kiss syndrome. KiDD syndrome leads to functional disorders of the head joints, which subsequently have an impact on the organism. Since such disorders do not “grow out”, it is therefore important to seek early treatment. However, the KiDD syndrome always causes discussions; numerous experts and doctors are of the opinion that the Kiss syndrome and the KiDD syndrome are back.What is KiDD Syndrome? See AbbreviationFinder for abbreviations related to KiDD.
If the child suffers from the following symptoms, doctors speak of KiDD syndrome: headaches, back pain or knee pain, migraines or “growing pains”, poor posture, poor posture.
The KiDD syndrome (head joint – induced – dyspraxia / dysgnosia) is a consequence of the so-called Kiss syndrome. Dysgnosia (perception disorder) and dyspraxia (learned movements cannot be carried out) are present. Doctors also speak again and again of a head joint-induced dysfunction (KiD).
The KiDD syndrome is a far-reaching clinical picture that manifests itself in the fact that those affected have to struggle with cognitive disorders and also anomalies in their movement processes. However, it has not yet been clarified whether KiDD syndrome actually exists as a disease.
Many medical professionals believe that KiDD syndrome is not an actual disease. An official diagnosis based on the ICD-10 does not exist. This is because there is no pathophysiological explanation for the clinical picture to date.
Finally, dyspraxia describes only a comprehensive developmental disorder that is responsible for the disturbance in the movement processes. Dysgnosia simply describes the inability to reproduce information that has already been learned.
Causes
Severe coordination, developmental and cognitive disorders that are not due to pathological conditions and occur in infancy or early childhood are usually assigned to the clinical picture of the so-called KiDD syndrome. Above all, this term is used again and again in alternative medicine.
That group is convinced that the clinical picture of KiDD syndrome exists. So far, however, there has been no scientific proof that the KiDD syndrome has not been recorded pathophysiologically, let alone molecular biological or genetic causes that suggest such a syndrome have been discovered. The so-called diagnosis is only substantiated by a large number of disorders.
KiDD syndrome is also seen as a consequence of untreated Kiss syndrome; again, there is no actual evidence that this is actually the case. The so-called Kiss syndrome is also controversial in medical circles.
However, those affected by children who suffer from KiDD syndrome are convinced that it is definitely an independent clinical picture. However, they only receive support from alternative medicine practitioners.
Symptoms, Ailments & Signs
If the child suffers from the following symptoms, doctors speak of KiDD syndrome: headaches, back pain or knee pain, migraines or “growing pains”, poor posture, poor posture.
Also, limitations in movement, difficulties in coordination and motor deficits are all factors that can be the first signs of KiDD syndrome. Sometimes there are concentration and learning disorders, which mainly occur in school. Perception disorders, disturbed social integration, emotional disorders and hyperactivity are also possible.
Furthermore, the children are insecure in their spatial orientation, suffer from acrophobia and have insomnia, with nocturnal urination being not uncommon. Orthodontic problems such as cross, malocclusion or overbite and mouth breathing are also possible.
The symptoms that indicate KiDD syndrome can also have enormous long-term consequences for adults: adults suffer from chronic back pain, cervical spine problems, migraines, have balance and movement disorders, often suffer from ringing in the ears (tinnitus) and herniated discs.
Diagnosis & course of disease
So far there is no official diagnosis. This means that there is no KiDD syndrome – at least from the medical point of view. Therapists and doctors who belong to the “European workgroup for manual medicine” (EWMM) mainly speak of the KiDD syndrome.
Even if, according to the EWMM, there is more evidence that it is an actual clinical picture, many experts are critical. Again and again, applications to accept the KiDD syndrome as an actual disease are rejected. The Society for Neuropaediatrics has declared the complex of issues to be untenable, speculative and generalised.
There are also always critical voices in the specialist areas of manual medicine. For example, the “Doctors’ Society for Contaminated Site Therapy and Manual Child Treatment” (ÄGAMK) decided not to speak of Kiss or KiDD syndrome, but of tonal asymmetry syndrome (TAS).
Complications
The KiDD syndrome causes considerable difficulties and discomfort in the patient’s daily life. Most of those affected suffer from severe pain in different regions of the body. It is not uncommon for this to lead to headaches, which can lead to problems concentrating or sleeping disorders.
Pain from the back can also spread to other regions and cause problems there. In general, the KiDD syndrome leads to coordination difficulties and often to restricted mobility. Most of those affected suffer from a fear of heights and from anxiety or hyperactivity. Perception disorders can also occur, which lead to delayed development, especially in children.
The quality of life of those affected is significantly restricted and reduced by the KiDD syndrome. Various malformations can also occur. These deformities can lead to bullying or teasing, especially in children. A causal treatment of the KiDD syndrome is not possible.
The individual complaints can possibly be treated with the help of therapies. However, it is not uncommon for psychological therapy to be necessary, in which parents or relatives also take part.
When should you go to the doctor?
Parents who notice symptoms such as headaches, migraines, back and knee pain or poor posture in their child should contact the pediatrician immediately. The same applies if perception disorders, emotional problems or vegetative disorders such as sleep disorders or nocturnal urination occur. If the child shows other signs of KiDD syndrome, it is best to see the pediatrician on the same day. Orthodontic problems require treatment by an orthodontist. A therapist should also be consulted.
Psychological support should be started early in childhood. The parents of affected children should also take advantage of therapeutic advice and also exchange ideas with other affected parents. Comprehensive knowledge about the disease makes it much easier to deal with the child. In addition, parents learn to manage the stress of raising a child with Kidd syndrome. Depending on the symptoms, KiDD syndrome must be treated by a general practitioner or an alternative medicine practitioner and various specialists.
Treatment & Therapy
Due to the fact that the symptoms – depending on the person affected – are different, the therapy must be individually adapted. The therapy mainly consists of ergotherapeutic and physiotherapeutic measures. In this way it is possible that incorrect posture and coordination disorders can be reduced.
Such exercises help patients to improve their balance. Sometimes, however, the focus is on prevention, so that various complaints – such as problems with the cervical spine – do not occur in adulthood. Pharmacological treatments are possible but should only be used when necessary.
For example, learning and attention disorders and depressive flare-ups, which are possible as the disease progresses, can be prevented or improved. The attending doctor decides whether and to what extent such treatment is actually necessary. Painkillers are not recommended.
Psychological therapy, primarily by a child psychologist, is advisable. Parents of children who suffer from KiDD syndrome should primarily contact alternative medicine.
Outlook & Forecast
It is very difficult to make a prognosis with KiDD syndrome. Depending on the opinion of the expert, a diagnosis is made that is not always congruent with the results and views of science and medicine. For this reason, the treatment of those affected and the prospect of alleviating the symptoms is extremely difficult. By using various treatment methods, many sufferers report an alleviation of the existing symptoms. Since the syndrome is characterized by a large number of disorders, there is still no talk of recovery or healing.
Improving the quality of life due to the impairments is the main priority. Ultimately, those affected and their relatives can only report individually whether there are positive changes. The therapy options used are extensive and are determined at the discretion of the alternative doctor and the relatives. Depending on current knowledge, there is often a change from different methods.
Poor posture and coordination disorders are treated with physiotherapeutic approaches in most patients. If the exercises begin early in the patient’s life, long-term positive developments are often documented. In some cases, surgical interventions are necessary. These are always associated with risks and side effects. If no further complications occur, patients often report that their mobility options have been optimized.
Prevention
Preventive measures are unknown due to the fact that there is no known cause so far, and sometimes the doctors are even unsure whether KiDD syndrome is a disease at all. It is important that – even if conventional medicine does not see the KiDD syndrome as an illness – various measures are taken to improve the symptoms.
Aftercare
As a rule, those affected with KiDD syndrome have no special measures and options for aftercare, so that a doctor should first and foremost be consulted with this disease at a very early stage. An early diagnosis usually has a very positive effect on the further course of the disease and can also prevent further complications or other symptoms.
The sooner a doctor is consulted, the better the further course, so ideally the person concerned should contact a doctor at the first signs and symptoms of the disease. Those affected with KiDD syndrome are usually dependent on physiotherapy and physiotherapy. Many of the exercises can sometimes be performed at home, which may speed up healing somewhat.
The long-term support and care of those affected by their own parents and other relatives is also very important. Intensive and loving conversations are also necessary here, as this can prevent psychological complaints and other depressions. In most cases, the KiDD syndrome does not reduce the life expectancy of the person affected. Contact with other patients with KiDD syndrome can also be very useful, as this often leads to an exchange of information.
You can do that yourself
As a congenital disease, KiDD syndrome cannot be cured. However, it is accompanied by symptoms that can be counteracted in everyday life in the form of self-help. Patients are often affected by headaches. A cool environment, well-ventilated rooms and darkness can help. In addition, KiDD syndrome is often accompanied by restricted mobility. Accordingly, routine movement exercises are important.
In addition to maintaining motor skills, exercise can also have a positive effect on the psyche and psychosomatic symptoms that are often associated with chronic diseases. Concentration exercises are also part of the everyday help of those affected. In the course of the disease, the ability to concentrate dwindles. The exercises help patients to concentrate and orientate themselves in everyday life.
The KiDD syndrome primarily affects the psyche of the patient. For relatives and friends, the focus in everyday help should therefore be on motivation and stabilizing the personality. Above all, the social connection should be maintained, since those affected tend to isolate themselves. Finally, dietary changes are part of the therapy. These can be integrated into everyday life. Depending on the symptoms, caffeine should be avoided, for example. A balanced diet is also important.